The rareness of autoimmune diseases like GPA can leave those affected by them feeling alone and left to themselves. That’s why families, friends and patients have joined their efforts to create platforms to share their stories, worries and experiences.
Arbeitskreis Vaskulitits is a German network of people diagnosed with vasculitits, sharing patient reports as well as background-information. Its goal is to educate the public on GPA and similar diseases to help create public awareness. For direct contact a forum has been implemented.