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This Website has been created to give people affected, their relatives and others involved the chance, to inform themselves about the illness Granulomatosis with Polyangiitis, in short GPA, also known as Morbus Wegener illness. We would like to help you to better understand GPA, including the mechanisms, the development of the illness and findings that have been made until today.The overall aim of our initiative is to help create a better understanding of GPA that leads to a better and easier way to cope with the diagnosis.
We would like you to regard this website not only as an information tool, but also as an adviser and encouragement to support you on your way to understand and deal with this illness. It gives you the opportunity to be able to get information yourself and provides you with examples of that despite the diagnosis of GPA, your life can be happy, active and fulfilled.
Under the headline „the illness” you will find several information explaining the cause, medical conditions as well as diagnosis – or treatment possibilities of GPA.
Apart from the more medically detailed description of GPA, you can also find a summary, where the illness is explained in simpler terms so that, without any prior knowledge, anyone can understand.
Together with the University Hospital Hamburg-Eppendorf, the John Grube Foundation e.V. regularly organizes patient information hours.
Under the direction of the rheumatologist and GPA expert Dr. Ulrike Schnoor, patients can get advice here in a small group and ask questions unbureaucratically.
This format is also particularly intended for relatives and those otherwise affected who want to better understand the illness of their loved ones.
Register for our network using the following link to be invited to the information hours:
Information’s on the actual state of medical research regarding GPA, can be found under the section “Research” in the navigation bar. You can find studies, research projects and findings that do not only provide you with answers you have already been looking for but wants to encourage you on your way, facing GPA.
The section “Life with GPA” was established to give an insight in the life and the way other affected people deal with their diagnosis, going further into how GPA affected their lives. Here you can find progress reports of people who were kind enough to tell and share their story. It demonstrates that a fulfilled life without pain is possible despite your diagnosis.
The development of the website GPA-info.org is based on an initiative of the John Grube Foundation. Since a personal struggle with the illness of GPA the John Grube Foundation is engaging in a lot in fields concerning GPA, such as the support and assistance of other people affected. One of the major goals is to make the most recent findings and information easily accessible and understandable for everyone. If you would like to learn more about the association, we invite you to take a look at their website.
At the moment we are focussing a lot on the establishment and further distribution of a qualified network, as a support and contact for people affected by Granulomatosis with Polyangiitis. Under the same section “network” in the navigation bar, we will introduce renowned treatment centers, doctors and other informative websites or forums regarding GPA, to demonstrate the amount of help around you and point out the different ways to get in contact with people or institutions that might help you.